September Update

Wow, September has been a really busy month, where to start

Well lets go back to the beginning, he started big school and for me it was a really big deal, I had been so worried about him not being able to cope, it is a big class with 30 children, a teacher, a nursery nurse and a TA, he is getting 2 mornings a week dedicated TA time to support him.

The first week seemed to go ok, children in key stage one get free school meals but he wasn't eating anything at all and with the problems with his weight we decided that a pack up would be best for him. Since then he has been much better.

First Day of School

School have been really good, we have a communication book which tells us what he has been upto during that day as he doesn't speak it means that we can be sure that he is ok and that he is joining in, my main worry is that he will get left out because he doesn't talk.

We had a meeting at the school with the senco, class teacher, school nurse and ed psyche (new ed psyche which kinda made it feel like we were starting again with things. The action autism lady is going in to school on the 7th of October to see him, but I only know this because the school told me, they haven't contacted me at all. I have asked the school to raise this with them when they turn up, I have PR not the school and I should be informed when professionals are planning to visit and assess my son.

He has also started his swimming lessons, the teacher wasn't informed of my sons communication issues even though I made sure the swimming co-ordinator knew before I booked him on, and before the 1st lesson. So when he got out she said that he wouldn't tell her his name, he doesn't talk so he wouldn't do. I then explained everything that I had already explained, and did complain to the centre about the lack of communication between staff.

Finally yesterday I took him for blood tests, to get there to be told that one of the tests needed to be done in very specific conditions and taken to the lab within a set time frame and the clinic he had the appointment at couldn't do it. I was given the option of him having the other tests and just going back for the one that was missing, but I refused, I am not putting my lad through something twice when it can just be done the once and we have to go back a week on Monday to the hospital.

He is getting a bit better though, he is saying Mummy now - well 'amny' which is close enough for me.